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Day 119 - Monday 16th October 2017 (17 weeks old today)

I got Jack up and ready for school then went to work early this morning.... our new direct government contract starts on the 1st November and I haven't done anything in terms of preparation for it ๐Ÿ™ˆ๐Ÿ™ˆ I set off to the hospital at 11:45am for the 1pm meeting and when I got there Lisa was fuming...... she had put a complaint in against last night's nurse..... the nurse didn't check on Theo all through her shift and there was a serious issue with his notes this morning..... they had been filled in! We had the meeting at 1pm and a plan was put in place for the oxygen to be installed at the house on Thursday, and then Theo to come home on Friday morning ๐Ÿ˜๐Ÿ˜๐Ÿ˜ We just want to get him home now..... Lisa is doing everything for Theo apart from drawing his drugs up, and when we get home we will be doing that ourselves anyway!! It's only another 4 days though ๐Ÿ˜๐Ÿ˜ Theo was still doing great apart from his reflux. His monitor was turned off today and he was being really cute in his baby rocker all afternoon xx I went to meet Jack at home after school and then spent the night at home doing the remaining jobs around the house..... I started to put the home coming decorations around the house.... banners and welcome home Theo bunting โคโคโค I can't wait!!! Thanks for reading, please share this blog with everyone you know to extend it's reach.... Subscribe to our page to receive a notification of the next blog.... You can donate to our two amazing charities at: www.gofundme.com/theosnicujourney

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